It's taken a long time to figure that out that I have Achalasia. I'll describe the steps that got me to this diagnosis and describe that steps I'm taking to treat it. I hope this will help someone who has similar symptoms, and that I can learn from any thoughts or comments people would like to share.
Monday, August 22, 2022
Heller Myotomy at 11 and a half years
I've been having dry cough, exhaustion and intermittent fever and chills, increased difficulty eating for over a month with several negative Covid tests.
Three moths ago I had a FL esophagram double contrast and the results stated "Severe esophageal dilation".
Asking my PCP today if she thought my symptoms were related to Achalasia she casually replied:
"Oh no! I asked your specialist, who said, sadly, because you have severely burned out achalasia, there is nothing that can be done. Even taking your esophagus out would most likely be very terrible for you. I am so sorry to deliver the bad news."
"Severely burned out achalasia"? Out of nowhere mentioning removing my esophagus?! WTF? I consider this the most irresponsible, least professional message I've ever received from a doctor.
Not going back to that PCP. Seeking an Achalaia specialist.
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